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Child Disability and Family Life

Project description

The impact of raising a disabled child

The effects of raising a disabled child can be numerous and varied, and affect the entire family household. In Europe, approximately 4 % of children have various disabilities, and about a million of them attend special schools. However, there is a lack of research that summarises the challenges and processes of families with disabled children. The EU-funded Frailife project aims to fill this crucial gap by using a comparative and population approach to unveil heterogeneous effects, family outcomes and pathways, short- and long-term effects, mechanisms and causalities. This project will allow for an analysis of the general functionality of families with disabled children to inform better policies of the most fragile families in European society.

Objective

Across the European Union, approximately 4% among individuals under age 16 have a disability, and over 15 million school-age children are known to have special educational needs. Disabilities limit children in their everyday activities and impact families in myriad ways. FRAILIFE aims to comprehensively analyze the effects of a child disability on family members parents, siblings, and grandparents in Europe, using high-quality data (registers, surveys, social media), innovative research designs and methods. By focusing on the impact of child disability on family members life course trajectories, health outcomes, and social participation, FRAILIFE speaks to both general family processes and the special case of Europes frailest families. The existing literature on families with a disabled child is scattered, built on small convenience samples, and often focused on a specific disease; the findings are inconclusive and non-generalizable. FRAILIFE
elevates the evidentiary standard by: i) using a population approach, which compares families with and without a disabled child and provides opportunities to uncover heterogeneous effects; ii) going beyond simple associations between child disability and family outcomes to establish causal pathways, identify underlying mechanisms, and uncover causal effects; iii) investigating both short- and long-term consequences of child disability on families; iv) adopting a comparative perspective to uncover the moderating effects of institutions
and culture. Beyond the specific insights about the networked consequences of disability, this project contributes to the field of family demography, as the analysis of extremely frail families has relevance for the general functioning of all families facing adverse events. FRAILIFE will bring families with a disabled child out of their invisibility, offering new and important insights on their functioning, characteristics, and challenges, while informing effective family-centered policy

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Keywords

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Programme(s)

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Topic(s)

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Funding Scheme

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HORIZON-ERC - HORIZON ERC Grants

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Call for proposal

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(opens in new window) ERC-2022-STG

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Host institution

UNIVERSITA COMMERCIALE LUIGI BOCCONI
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 1 401 938,00
Address
VIA SARFATTI 25
20136 Milano
Italy

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Region
Nord-Ovest Lombardia Milano
Activity type
Higher or Secondary Education Establishments
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Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 1 401 938,00

Beneficiaries (1)

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