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Child Disability and Family Life

Descrizione del progetto

L’impatto di crescere un figlio disabile

Gli effetti derivanti dal crescere un figlio disabile possono essere numerosi e variegati e riguardano l’intero nucleo familiare. In Europa, circa il 4 % dei bambini presenta varie disabilità e circa un milione di loro frequenta scuole speciali. Manca però una ricerca che riassuma le difficoltà e i processi delle famiglie con figli disabili. Il progetto Frailife, finanziato dall’UE, intende colmare questa lacuna cruciale utilizzando un approccio comparativo e di popolazione per svelare effetti eterogenei, esiti e percorsi familiari, effetti a breve e lungo termine, meccanismi e causalità. Questo progetto consentirà un’analisi della funzionalità generale delle famiglie con bambini disabili, per meglio orientare le politiche per le famiglie più fragili della società europea.

Obiettivo

Across the European Union, approximately 4% among individuals under age 16 have a disability, and over 15 million school-age children are known to have special educational needs. Disabilities limit children in their everyday activities and impact families in myriad ways. FRAILIFE aims to comprehensively analyze the effects of a child disability on family members – parents, siblings, and grandparents – in Europe, using high-quality data (registers, surveys, social media), innovative research designs and methods. By focusing on the impact of child disability on family members’ life course trajectories, health outcomes, and social participation, FRAILIFE speaks to both general family processes and the special case of Europe’s frailest families. The existing literature on families with a disabled child is scattered, built on small convenience samples, and often focused on a specific disease; the findings are inconclusive and non-generalizable. FRAILIFE
elevates the evidentiary standard by: i) using a population approach, which compares families with and without a disabled child and provides opportunities to uncover heterogeneous effects; ii) going beyond simple associations between child disability and family outcomes to establish causal pathways, identify underlying mechanisms, and uncover causal effects; iii) investigating both short- and long-term consequences of child disability on families; iv) adopting a comparative perspective to uncover the moderating effects of institutions
and culture. Beyond the specific insights about the networked consequences of disability, this project contributes to the field of family demography, as the analysis of extremely frail families has relevance for the general functioning of all families facing adverse events. FRAILIFE will bring families with a disabled child out of their invisibility, offering new and important insights on their functioning, characteristics, and challenges, while informing effective family-centered policy

Istituzione ospitante

UNIVERSITA COMMERCIALE LUIGI BOCCONI
Contribution nette de l'UE
€ 1 401 938,00
Indirizzo
VIA SARFATTI 25
20136 Milano
Italia

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Regione
Nord-Ovest Lombardia Milano
Tipo di attività
Higher or Secondary Education Establishments
Collegamenti
Costo totale
€ 1 401 938,00

Beneficiari (1)