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CORDIS - Résultats de la recherche de l’UE
CORDIS

Child Disability and Family Life

Description du projet

Élever un enfant handicapé: conséquences

Le fait d’élever un enfant handicapé peut avoir des conséquences aussi nombreuses que variées et affecter tous les membres du foyer. En Europe, environ 4 % des enfants présentent diverses situations de handicap et près d’un million d’entre eux fréquentent des écoles spéciales. Cela dit, trop peu de recherches résument les défis et les processus des familles comptant des enfants handicapés. Le projet Frailife, financé par l’UE, entend combler cette lacune cruciale en adoptant une approche comparative et populationnelle visant à dévoiler les effets hétérogènes, les résultats et les parcours familiaux, les effets à court et long termes, les mécanismes et les liens de causalité. Ce projet permettra d’analyser la fonctionnalité générale des familles comptant des enfants handicapés, ce qui étayera l’élaboration de meilleures politiques pour les familles les plus fragiles de la société européenne.

Objectif

Across the European Union, approximately 4% among individuals under age 16 have a disability, and over 15 million school-age children are known to have special educational needs. Disabilities limit children in their everyday activities and impact families in myriad ways. FRAILIFE aims to comprehensively analyze the effects of a child disability on family members – parents, siblings, and grandparents – in Europe, using high-quality data (registers, surveys, social media), innovative research designs and methods. By focusing on the impact of child disability on family members’ life course trajectories, health outcomes, and social participation, FRAILIFE speaks to both general family processes and the special case of Europe’s frailest families. The existing literature on families with a disabled child is scattered, built on small convenience samples, and often focused on a specific disease; the findings are inconclusive and non-generalizable. FRAILIFE
elevates the evidentiary standard by: i) using a population approach, which compares families with and without a disabled child and provides opportunities to uncover heterogeneous effects; ii) going beyond simple associations between child disability and family outcomes to establish causal pathways, identify underlying mechanisms, and uncover causal effects; iii) investigating both short- and long-term consequences of child disability on families; iv) adopting a comparative perspective to uncover the moderating effects of institutions
and culture. Beyond the specific insights about the networked consequences of disability, this project contributes to the field of family demography, as the analysis of extremely frail families has relevance for the general functioning of all families facing adverse events. FRAILIFE will bring families with a disabled child out of their invisibility, offering new and important insights on their functioning, characteristics, and challenges, while informing effective family-centered policy

Institution d’accueil

UNIVERSITA COMMERCIALE LUIGI BOCCONI
Contribution nette de l'UE
€ 1 401 938,00
Adresse
VIA SARFATTI 25
20136 Milano
Italie

Voir sur la carte

Région
Nord-Ovest Lombardia Milano
Type d’activité
Higher or Secondary Education Establishments
Liens
Coût total
€ 1 401 938,00

Bénéficiaires (1)