Descripción del proyecto
Una nueva estrategias para el intercambio ético de los datos sanitarios
En la era digital actual, el impulso de la Unión Europea para optimizar la utilización de los datos sanitarios ha generado una gran preocupación. La inminente entrada en vigor de la ley del Corpus de Estrategia Digital ha acentuado el temor a que las instituciones públicas exploten extensos datos sanitarios y pongan en peligro el bienestar de los ciudadanos, especialmente en los sistemas sanitarios basados en empresas aseguradoras. Con el apoyo de Marie Skłodowska-Curie Actions, el equipo del proyecto DataCom establecerá un marco ético para el uso secundario de los datos sanitarios en poder de organismos públicos. El equipo de DataCom se centrará en Italia, España y los Países Bajos y será pionero en el concepto de mercantilización ética. Esta estrategia pretende aprovechar los datos personales para un bien mayor, mientras respeta las expectativas individuales y aborda los riesgos asociados.
Objetivo
The EU has recently enhanced the potential of health data in the EU digital market by promoting a number of initiatives and new regulations to facilitate data sharing and re-use among public institutions: the forthcoming provisions of the Digital Strategy Corpus of law. These, in combination with pre-existing rules and practices of health data exploitation, might sharpen the risks for citizens, for example allowing public bodies to exploit big data sets - to make detrimental decisions regarding the access of certain patients to health care (e.g. in the case of insurance-based systems). In this context, academic analysis is urgently needed, as well as suggesting a revision of the new regulations to EU policy-makers to facilitate responsible data sharing. DataCom aims at building a new framework to facilitate an ethical secondary use of health data held by public bodies, with the aim of improving accountability and enhancing responsible re-use. To build it, I will develop and test in intersectoral practical environments the innovative concept of “Ethical Commodification”: the possibility of exploiting personal data in an ethical way for the public good, in accordance with the data subject’s expectations and needs and taking into account the risks associated with the exploitation of anonymized data sets, focusing on 3 Member States, Italy, Spain, and the Netherlands. In order to reach this objective, DataCom has a strong interdisciplinary and intersectoral approach, bridging law, ethics, and computer science, taking into consideration the needs of the public sector and those of citizens. To ensure the successful implementation of these project goals I will conduct my research at the University of Turin's Law Department, with the guidance of Prof. Ugo Pagallo, a leading scholar. This project will prepare me to become a tenured scholar and obtain advanced funding, strengthening my academic profile and allowing me to establish my own research group.
Ámbito científico
Palabras clave
Programa(s)
- HORIZON.1.2 - Marie Skłodowska-Curie Actions (MSCA) Main Programme
Régimen de financiación
HORIZON-TMA-MSCA-PF-EF - HORIZON TMA MSCA Postdoctoral Fellowships - European FellowshipsCoordinador
10124 Torino
Italia