Project description
Sustainable ecosystem to improve the lives of rare disease patients
Rare diseases (RD) research remains fragmented throughout Europe, resulting in delays in diagnosis, fewer medicines and reduced access to care. This research domain could greatly benefit from better coordination within and beyond Europe. The EU-cofunded EJP RD project (130 institutions, 35 countries) is developing an effective RD research ecosystem to address this issue. It improves the integration, effectiveness and social impact of RD research by developing, demonstrating and promoting Europe/world-wide research, and sharing clinical data, resources, procedures, knowledge and expertise. It also carries out and further establishes an efficient financial support model for all RD research types coupled with accelerated exploitation of research results for the benefit of patients.
Programme(s)
Call for proposal
H2020-SC1-2018-Single-Stage-RTD
See other projects for this call
Funding Scheme
COFUND-EJP - COFUND (European Joint Programme)Coordinator
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Address
Rue De Tolbiac 101
75654 Paris
France
75654 Paris
France
Activity type
Research Organisations
EU contribution
€ 12 042 284,76
Participants (87)
FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Austria
EU contribution
€ 524 000
Address
Sensengasse 1
1090 Wien
1090 Wien
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AIT AUSTRIAN INSTITUTE OF TECHNOLOGY GMBH
Austria
EU contribution
€ 887 811
Address
Giefinggasse 4
1210 Wien
1210 Wien
Activity type
Research Organisations
LUDWIG BOLTZMANN GESELLSCHAFT GMBH
Austria
EU contribution
€ 144 410
Address
Nussdorfer Strasse 64 6 Stock
1090 Wien
1090 Wien
Activity type
Research Organisations
FONDS DE LA RECHERCHE SCIENTIFIQUE- FNRS
Belgium
EU contribution
€ 248 260
Address
Rue D'egmont 5
1000 Bruxelles
1000 Bruxelles
Activity type
Research Organisations
FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN
Belgium
EU contribution
€ 575 425
Address
Egmontstraat 5
1000 Brussel
1000 Brussel
Activity type
Research Organisations
KATHOLIEKE UNIVERSITEIT LEUVEN
Belgium
EU contribution
€ 85 037
Address
Oude Markt 13
3000 Leuven
3000 Leuven
Activity type
Higher or Secondary Education Establishments
MINISTRY OF EDUCATION YOUTH AND SPORTS
Czechia
EU contribution
€ 470 400
Address
Karmelitska 7
118 12 Prague
118 12 Prague
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SOTSIAALMINISTEERIUM
Estonia
EU contribution
€ 55 575
Address
Suur-ameerika 1
10122 Tallinn
10122 Tallinn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SUOMEN AKATEMIA
Finland
EU contribution
€ 512 750
Address
Hakaniemenranta 6
00531 Helsinki
00531 Helsinki
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AGENCE NATIONALE DE LA RECHERCHE
France
EU contribution
€ 2 479 350
Address
50 Avenue Daumesnil
75012 Paris
75012 Paris
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDATION MALADIES RARES
France
EU contribution
€ 908 920
Address
Rue Didot 96
75014 Paris
75014 Paris
Activity type
Other
ASS FRANCAISE CONTRE LES MYOPATHIES
France
EU contribution
€ 5 162
Address
47-83 47 Boulevard De L'hopital, Institut De Myolo
75013 Paris
75013 Paris
Activity type
Other
IMAGINE INSTITUT DES MALADIES GENETIQUES NECKER ENFANTS MALADES FONDATION
France
EU contribution
€ 23 537
Address
24 Bd Du Montparnasse
75015 Paris 15
75015 Paris 15
Activity type
Research Organisations
DEUTSCHES ZENTRUM FUR LUFT - UND RAUMFAHRT EV
Germany
EU contribution
€ 2 686 817
Address
Linder Hohe
51147 Koln
51147 Koln
Activity type
Research Organisations
UNIVERSITAETSKLINIKUM AACHEN
Germany
EU contribution
€ 445 550
Address
Pauwelsstrasse 30
52074 Aachen
52074 Aachen
Activity type
Higher or Secondary Education Establishments
CHARITE - UNIVERSITAETSMEDIZIN BERLIN
Germany
EU contribution
€ 319 056
Address
Chariteplatz 1
10117 Berlin
10117 Berlin
Activity type
Higher or Secondary Education Establishments
UNIVERSITAETSKLINIKUM FREIBURG
Germany
EU contribution
€ 126 584
Address
Hugstetter Strasse 49
79106 Freiburg
79106 Freiburg
Activity type
Higher or Secondary Education Establishments
NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL
Hungary
EU contribution
€ 190 025
Address
Kethly Anna Ter 1
1077 Budapest
1077 Budapest
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
THE HEALTH RESEARCH BOARD
Ireland
EU contribution
€ 332 130
Address
Lower Baggot Street 73
2 Dublin
2 Dublin
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
MINISTERO DELLA SALUTE
Italy
EU contribution
€ 1 635 350
Address
Via Giorgio Ribotta 5
00144 Roma
00144 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
REGIONE TOSCANA
Italy
EU contribution
€ 152 400
Address
Palazzo Strozzi Sacrati - Piazza Del Duomo 10
50122 Firenze
50122 Firenze
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDAZIONE REGIONALE PER LA RICERCA BIOMEDICA
Italy
EU contribution
€ 547 900
Address
Piazza Citta Di Lombardia 1
20124 Milano
20124 Milano
Activity type
Research Organisations
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Italy
EU contribution
€ 178 255
Address
Via Abate Eustasio 30
70010 Valenzano Bari
70010 Valenzano Bari
Activity type
Research Organisations
FONDAZIONE TELETHON
Italy
EU contribution
€ 929 539,63
Address
Via Varese 16/B
00185 Roma
00185 Roma
Activity type
Research Organisations
ISTITUTO SUPERIORE DI SANITA
Italy
EU contribution
€ 723 382
Address
Viale Regina Elena 299
00161 Roma
00161 Roma
Activity type
Research Organisations
CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE
Italy
EU contribution
€ 414 662
Address
Via Nicolo Putignani 178
70122 Bari
70122 Bari
Activity type
Research Organisations
TEDDY - EUROPEAN NETWORK OF EXCELLENCE FOR PAEDIATRIC CLINICAL RESEARCH
Italy
EU contribution
€ 173 113,50
Address
Via Luigi Porta 14
231261 Pavia
231261 Pavia
Activity type
Other
MINISTERO DELL'ISTRUZIONE, DELL'UNIVERSITA' E DELLA RICERCA
Italy
EU contribution
€ 185 086
Address
Via Michele Carcani 61
00153 Roma
00153 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
VALSTS IZGLITIBAS ATTISTIBAS AGENTURA
Latvia
EU contribution
€ 10 185
Address
Valnu Iela 1
1050 Riga
1050 Riga
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Lietuvos mokslo taryba
Lithuania
EU contribution
€ 99 388
Address
Gedimino 3
LT-01103 Vilnius
LT-01103 Vilnius
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
VIESOJI ISTAIGA VILNIAUS UNIVERSITETO LIGONINE SANTAROS KLINIKOS
Lithuania
EU contribution
€ 133 364
Address
Santariskiu G 2
08661 Vilnius
08661 Vilnius
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDS NATIONAL DE LA RECHERCHE
Luxembourg
EU contribution
€ 283 492
Address
2 Avenue De L'universite
4365 Esch-sur-alzette
4365 Esch-sur-alzette
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
ZORGONDERZOEK NEDERLAND ZON
Netherlands
EU contribution
€ 2 899 566
Address
Laan Van Nieuw Oost Indie 334
2593CE Den Haag
2593CE Den Haag
Activity type
Research Organisations
ACADEMISCH ZIEKENHUIS GRONINGEN
Netherlands
EU contribution
€ 1 372 748
Address
Hanzeplein 1
9713 GZ Groningen
9713 GZ Groningen
Activity type
Higher or Secondary Education Establishments
UNIVERSITEIT MAASTRICHT
Netherlands
EU contribution
€ 620 221
Address
Minderbroedersberg 4-6
6200 MD Maastricht
6200 MD Maastricht
Activity type
Higher or Secondary Education Establishments
NARODOWE CENTRUM BADAN I ROZWOJU
Poland
EU contribution
€ 499 625
Address
Ul. Nowogrodzka 47A
00 695 Warszawa
00 695 Warszawa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
WARSZAWSKI UNIWERSYTET MEDYCZNY
Poland
EU contribution
€ 81 255
Address
Ul. Zwirki I Wigury 61
02 091 Warszawa
02 091 Warszawa
Activity type
Higher or Secondary Education Establishments
GDANSKI UNIWERSYTET MEDYCZNY
Poland
EU contribution
€ 87 590
Address
Ulica M Sklodowskiej Curie 3A
80210 Gdansk
80210 Gdansk
Activity type
Higher or Secondary Education Establishments
INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA
Poland
EU contribution
€ 87 155
Address
Aleja Dzieci Polskich 20
04730 Warszawa
04730 Warszawa
Activity type
Research Organisations
FUNDACAO PARA A CIENCIA E A TECNOLOGIA
Portugal
EU contribution
€ 143 325
Address
Avenida D Carlos I 126
1249 074 Lisboa
1249 074 Lisboa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
INSTITUTO NACIONAL DE SAUDE DR. RICARDO JORGE
Portugal
EU contribution
€ 14 026
Address
Avenida Padre Cruz
1600 560 Lisboa
1600 560 Lisboa
Activity type
Research Organisations
SLOVENSKA AKADEMIA VIED
Slovakia
EU contribution
€ 127 005
Address
Stefanikova 49
814 38 Bratislava
814 38 Bratislava
Activity type
Research Organisations
INSTITUTO DE SALUD CARLOS III
Spain
EU contribution
€ 765 898
Address
Monforte De Lemos 5
28029 Madrid
28029 Madrid
Activity type
Research Organisations
FUNDACIO CENTRE DE REGULACIO GENOMICA
Spain
EU contribution
€ 1 046 730
Address
Carrer Doctor Aiguader 88
08003 Barcelona
08003 Barcelona
Activity type
Research Organisations
UNIVERSIDAD POLITECNICA DE MADRID
Spain
EU contribution
€ 341 571
Address
Calle Ramiro De Maeztu 7 Edificio Rectorado
28040 Madrid
28040 Madrid
Activity type
Higher or Secondary Education Establishments
CONSORCIO CENTRO DE INVESTIGACION BIOMEDICA EN RED M.P.
Spain
EU contribution
€ 61 853
Address
Calle Monforte De Lemos 5
28029 Madrid
28029 Madrid
Activity type
Research Organisations
VETENSKAPSRADET - SWEDISH RESEARCH COUNCIL
Sweden
EU contribution
€ 645 050
Address
Vastra Jarnvagsgatan 3
111 64 Stockholm
111 64 Stockholm
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
VERKET FOR INNOVATIONSSYSTEM
Sweden
EU contribution
€ 439 300
Address
Master Samuelsg 56
10158 Stockholm
10158 Stockholm
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
UNIVERSITY OF LEICESTER
United Kingdom
EU contribution
€ 1 367 695
Address
University Road
LE1 7RH Leicester
LE1 7RH Leicester
Activity type
Higher or Secondary Education Establishments
THE UNIVERSITY OF LIVERPOOL
United Kingdom
EU contribution
€ 69 711
Address
Brownlow Hill 765 Foundation Building
L69 7ZX Liverpool
L69 7ZX Liverpool
Activity type
Higher or Secondary Education Establishments
UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom
EU contribution
€ 66 412
Address
Kings Gate
NE1 7RU Newcastle Upon Tyne
NE1 7RU Newcastle Upon Tyne
Activity type
Higher or Secondary Education Establishments
ST ANNA KINDERKREBSFORSCHUNG VEREIN
Austria
EU contribution
€ 113 610
Address
Zimmermannplatz 10
1090 Wien
1090 Wien
Activity type
Research Organisations
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS
France
EU contribution
€ 648 480
Address
3 Avenue Victoria
75000 Paris
75000 Paris
Activity type
Research Organisations
HOPITAUX UNIVERSITAIRES DE STRASBOURG
France
EU contribution
€ 11 900
Address
Place De L Hopital 1
67091 Strasbourg Cedex
67091 Strasbourg Cedex
Activity type
Research Organisations
CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD
France
EU contribution
€ 28 061,25
Address
Rue Laennec 28
69373 Lyon
69373 Lyon
Activity type
Research Organisations
UNIVERSITATSKLINIKUM HEIDELBERG
Germany
EU contribution
€ 643 196
Address
Im Neuenheimer Feld 672
69120 Heidelberg
69120 Heidelberg
Activity type
Higher or Secondary Education Establishments
EBERHARD KARLS UNIVERSITAET TUEBINGEN
Germany
EU contribution
€ 611 511
Address
Geschwister-scholl-platz
72074 Tuebingen
72074 Tuebingen
Activity type
Higher or Secondary Education Establishments
JOHANN WOLFGANG GOETHE-UNIVERSITAET FRANKFURT AM MAIN
Germany
EU contribution
€ 1 015 552,13
Address
Theodor W Adorno Platz 1
60323 Frankfurt Am Main
60323 Frankfurt Am Main
Activity type
Higher or Secondary Education Establishments
HELIOS DR. HORST SCHMIDT KLINIKEN WIESBADEN GMBH
Participation ended
Germany
EU contribution
€ 0
Address
Ludwig Erhard Strasse 100
65199 Wiesbaden
65199 Wiesbaden
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ISTITUTO ORTOPEDICO RIZZOLI
Italy
EU contribution
€ 77 661
Address
Via Di Barbiano 1/10
40136 Bologna
40136 Bologna
Activity type
Research Organisations
AZIENDA OSPEDALIERO UNIVERSITARIA PISANA
Italy
EU contribution
€ 12 311
Address
Via Roma 67
56123 Pisa
56123 Pisa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AZIENDA OSPEDALIERA UNIVERSITARIA SENESE
Italy
EU contribution
€ 21 223,13
Address
Strada Delle Scotte 14
53100 Siena
53100 Siena
Activity type
Other
ACADEMISCH ZIEKENHUIS LEIDEN
Netherlands
EU contribution
€ 2 048 753,88
Address
Albinusdreef 2
2333 ZA Leiden
2333 ZA Leiden
Activity type
Higher or Secondary Education Establishments
STICHTING KATHOLIEKE UNIVERSITEIT
Netherlands
EU contribution
€ 1 082 879,72
Address
Houtlaan 4
6525 XZ Nijmegen
6525 XZ Nijmegen
Activity type
Higher or Secondary Education Establishments
ACADEMISCH MEDISCH CENTRUM BIJ DE UNIVERSITEIT VAN AMSTERDAM
Netherlands
EU contribution
€ 583 336
Address
Meibergdreef 15
1105AZ Amsterdam
1105AZ Amsterdam
Activity type
Higher or Secondary Education Establishments
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands
EU contribution
€ 24 622
Address
Dr Molewaterplein 40
3015 GD Rotterdam
3015 GD Rotterdam
Activity type
Higher or Secondary Education Establishments
SERVICIO MADRILENO DE SALUD
Spain
EU contribution
€ 48 405
Address
Plaza Carlos Trias Bertran 7
28020 Madrid
28020 Madrid
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST
United Kingdom
EU contribution
€ 42 011
Address
Freeman Hospital, High Heaton
NE7 7DN Newcastle-upon-tyne
NE7 7DN Newcastle-upon-tyne
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
EUROPEAN ORGANISATION FOR RESEARCH AND TREATMENT OF CANCER AISBL
Belgium
EU contribution
€ 5 162
Address
Avenue E. Mounier 83
1200 Brussels
1200 Brussels
Activity type
Research Organisations
INFRAFRONTIER GMBH
Germany
EU contribution
€ 182 756
Address
Ingolstadter Landstrasse 1
85764 Neuherberg
85764 Neuherberg
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
BIOBANKS AND BIOMOLECULAR RESOURCES RESEARCH INFRASTRUCTURE CONSORTIUM (BBMRI-ERIC)
Austria
EU contribution
€ 1 620 071,26
Address
Neue Stiftingtalstrasse 2/B/6
8010 Graz
8010 Graz
Activity type
Research Organisations
ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK
France
EU contribution
€ 418 573
Address
5 Rue Watt
75013 Paris
75013 Paris
Activity type
Research Organisations
EATRIS ERIC
Netherlands
EU contribution
€ 751 476,25
Address
De Boelelaan 1118
1081 HZ Amsterdam
1081 HZ Amsterdam
Activity type
Research Organisations
EUROPEAN MOLECULAR BIOLOGY LABORATORY
Germany
EU contribution
€ 1 899 849,91
Address
Meyerhofstrasse 1
69117 Heidelberg
69117 Heidelberg
Activity type
Research Organisations
EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION
France
EU contribution
€ 930 665
Address
Rue Didot 96
75014 Paris
75014 Paris
Activity type
Other
MINISTRY OF HEALTH
Israel
EU contribution
€ 476 942
Address
Yirmiyahu 39
9101002 Jerusalem
9101002 Jerusalem
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Switzerland
EU contribution
€ 714 035
Address
Wildhainweg 3
3012 Bern
3012 Bern
Activity type
Research Organisations
BLACKSWAN FOUNDATION
Switzerland
EU contribution
€ 193 287
Address
Chemin De La Riaz 11
1418 Vuarrens
1418 Vuarrens
Activity type
Other
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU
Turkey
EU contribution
€ 824 162
Address
Ataturk Bulvari 221
06100 Ankara
06100 Ankara
Activity type
Research Organisations
ACIBADEM MEHMET ALI AYDINLAR UNIVERSITY
Turkey
EU contribution
€ 223 365
Address
Icerenkoy Mah. Kayisdagi Cad. No/32 Atasehir
34752 Istanbul
34752 Istanbul
Activity type
Higher or Secondary Education Establishments
HACETTEPE UNIVERSITESI
Turkey
EU contribution
€ 51 271
Address
Hacettepe Universitesi Beytepe Kampusu Rektorluk Binasi
06800 Cankaya Ankara
06800 Cankaya Ankara
Activity type
Higher or Secondary Education Establishments
CANADIAN INSTITUTES OF HEALTH RESEARCH
Canada
EU contribution
€ 0
Address
Elgin Street 9Th Floor Address Locator 4809A 160
K1T 4H8 Ottawa Ontario
K1T 4H8 Ottawa Ontario
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDS DE RECHERCHE DU QUEBEC - SANTE
Canada
EU contribution
€ 0
Address
Rue Sherbrooke Ouest 500
H3A3C6 Montreal Quebec
H3A3C6 Montreal Quebec
Activity type
Other
INSERM TRANSFERT SA
France
EU contribution
€ 315 000
Address
Rue Watt 7
75013 Paris
75013 Paris
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
GENIKI GRAMMATIA EREVNAS KAI KAINOTOMIAS
Greece
EU contribution
€ 20 658,75
Address
Mesogeion Avenue 14-18
115 10 Athens
115 10 Athens
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
DEUTSCHE FORSCHUNGSGEMEINSCHAFT
Germany
EU contribution
€ 0
Address
Kennedyallee 40
53175 Bonn
53175 Bonn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AZIENDA SANITARIA UNIVERSITARIA FRIULI CENTRALE
Italy
EU contribution
€ 167 107
Address
Via Pozzuolo 330
33100 Udine
33100 Udine
Activity type
Research Organisations
