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RECAP preterm: Research on European Children and Adults born Preterm

Descrizione del progetto

DE EN ES FR IT PL

Integrare le conoscenze e la ricerca sulle nascite pretermine

Tra l’1 % e il 2 % dei bambini nati in Europa sono classificati come bambini molto pretermine (nati cioè prima delle 32 settimane di età gestazionale) o con un peso alla nascita molto basso (cioè inferiore a 1,5 kg). Questi bambini sono esposti a vari rischi per la salute e lo sviluppo che possono avere un impatto negativo sulla loro salute generale, con un aumento del rischio di paralisi cerebrale, deficit visivi e uditivi e deterioramento cognitivo. Il progetto RECAP preterm, finanziato dall’UE, si propone di sviluppare una piattaforma per supportare studi dettagliati su vari fattori legati alle popolazioni molto pretermine/con un peso alla nascita molto basso che non possono essere facilmente esplorati nelle coorti nazionali. La sua eterogenea rappresentanza sosterrà inoltre la ricerca e l’innovazione attraverso l’integrazione dei dati.

Obiettivo

The project’s overall aim is to improve the health, development and quality of life of children and adults born very preterm (VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g) – approximately 50 000 births each year in Europe – by establishing an ICT platform to integrate, harmonise and exploit the wealth of data from 20 European cohorts of VPT/VLBW children and adults and their families constituted from the early 1980s to the present, together with data from national registries.
VPT/VLBW births have higher risks of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and social problems than infants born at term and account for more than a third of the health and educational budgets for children. They may also face higher risks of non-communicable disease as they age. There is emerging evidence of reduced mental health, quality of life, partnering, family life and employment chances and wealth in adulthood.
The platform will enable stratified sub-group analyses of sociodemographic and clinical characteristics, neonatal complications, and otherwise rare medical conditions that cannot be studied in national population cohorts. The broad temporal, geographic, cultural and health system diversity makes it possible to study the impact of socioeconomic and organisational contexts and determine the generalisability of outcomes for VPT/VLBW populations.
The RECAP platform creates a value chain to promote research and innovation using population cohorts, beginning with the integration of VPT/VLBW cohorts to the translation and dissemination of new knowledge. It will be based on a sustainable governance framework, state-of-the art data management and sharing technologies, tools to strengthen research capacity, a hypothesis-driven research agenda and broad stakeholder participation, including researchers, clinicians, educators, policy makers and very preterm children and adults and their families.

Campo scientifico

Programma(i)

Argomento(i)

Invito a presentare proposte

H2020-SC1-2016-2017

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Bando secondario

H2020-SC1-2016-RTD

Meccanismo di finanziamento

RIA - Research and Innovation action

Coordinatore

NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO
Contribution nette de l'UE
€ 840 210,00
Indirizzo
ANNA VAN BUERENPLEIN 1
2595 DA Den Haag
Paesi Bassi

Mostra sulla mappa
Regione
West-Nederland Zuid-Holland Agglomeratie ’s-Gravenhage
Tipo di attività
Research Organisations
Collegamenti
Costo totale
€ 840 210,00

Partecipanti (20)

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Ultimo aggiornamento: 21 Settembre 2022

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Permalink: https://cordis.europa.eu/project/id/733280/it

European Union, 2024