Timely identification of PD patients and fully understanding of palliative care needs are the keys the intervention’s success. The PD_Pal Clinical recommendations will guide the need and timing of clinical and hospice referrals and define the role of the specialists and of the multidisciplinary palliative care team members with emphasis on Social Sciences and Humanities. Moreover, given the interaction with the EAN, the new approach will be easily transmitted to all European National neurological societies to be translated into best clinical practice. The connection of PD_Pal members with the MDS Task Force on Palliative Care will provide international validity to the new formulated recommendations and therefore increased chances of integration in different healthcare systems. Prognostic risk factors and indicators for palliative care referral have been investigated, identified and will be validated within the clinical study. Interventions similar to PD_Pal are gaining interest and providing evidence on the high satisfaction and retention in the program. PD_Pal will assess person-centered outcomes, the quality of life of patients and caregiver, the effect of using telemedicine on sustainability, and cost effectiveness and societal perspective.The objective of the PD_Pal intervention is to improve health and quality of life of both patients and caregivers as well as revalidate the provision of long-term care and the effectiveness of the proposed procedures and organizational or supportive system. The HTA will be a multidisciplinary process that will summarize information about the medical, social, economic and ethical issues related to the use of PDMonitor in a systematic, transparent, unbiased, robust manner. In the PD_Pal approach information, education, and an open debate with PwPs, caregivers and HCPs are the cornerstones of the palliative care intervention. The dissemination of the MOOC course will contribute to the training and information of HCPs dealing with PD, while being able to be benefited by PwPs and caregivers. Furthermore, it will provide knowledge about the motor status and complications, and address the specific needs of patients in need of palliative care.
