Periodic Reporting for period 2 - BornToGetThere (Implementation of early detection and early intervention service delivery in infants at risk for cerebral palsy to promote infants’ psychomotor development and maternal health)
Okres sprawozdawczy: 2021-07-01 do 2022-12-31
The overarching aim of the BORNTOGETTHERE program is to exploit current evidence on early detection, characterization and intervention for infants at high risk of Cerebral Palsy (CP) by implementing the first International Clinical Practice Guideline1 in multiple sites in Europe (Italy, Denmark, Netherlands), in low- and middle-income countries (Georgia, Sri Lanka) and hard to reach populations (Remote Queensland, QLD and Western Australia, WA).
Specifically, we will improve maternal and infant health through the following three specific aims (Table 1.1). Aim 1: to improve health programs for the early detection (ED) of CP, in a context-specific way, thereby reducing age at diagnosis and age at referral to CP-specific early intervention programs.
Aim 2: to improve health programs for the early surveillance (ES) of associated impairments and functional limitations in infants with CP and mental health of their parents, in a context specific way, thereby fostering individualized early intervention delivery and prevention of secondary complications (e.g. hip dislocation) for infants, and provision of support for their parents.
Aim 3: to improve health programs of early intervention (EI) in infants with CP, in a context-specific way, thereby improving the outcomes of the infants (motor, cognitive and social-emotional development) and of their caregivers (mental health).
These delays, however, have allowed a re-organization and thorough revision or materials and modification of methods of delivery, including additional barriers and opportunities for improvement. The project Consortium, including all partners and third parties, have embraced the opportunities and are on track with the project aims regardless of needing more time for some of the specific tasks being carried out.
Moreover, the family involvement and family organizations in the role of stakeholders has been stronger and more present than anticipated, we expect this will increase the impact of the activities of the project.