CORDIS oferuje możliwość skorzystania z odnośników do publicznie dostępnych publikacji i rezultatów projektów realizowanych w ramach programów ramowych HORYZONT.
Odnośniki do rezultatów i publikacji związanych z poszczególnymi projektami 7PR, a także odnośniki do niektórych konkretnych kategorii wyników, takich jak zbiory danych i oprogramowanie, są dynamicznie pobierane z systemu OpenAIRE .
Rezultaty
Repository of use cases use cases developed in collaboration with WP2 that will serve to provide examples of use of the Observatories.
Report on requirements specification (odnośnik otworzy się w nowym oknie)Report including specification for digital technology selection, adaptation and/or development produced in collaboration with Work Packages 2 and 5.
Assessment of the local and national situation (odnośnik otworzy się w nowym oknie)The resulting report will describe the regulatory frameworks underlying the architectural design, which is developed in parallel.
Second annual report on the progress and success of Observatories (odnośnik otworzy się w nowym oknie)Annual report of the second year of operation of the Observatories.
Development of a cross-calibration method to be used in all three disease areas, and exploration of a cross-calibration approach between all core outcome sets and PRO tools (odnośnik otworzy się w nowym oknie)This specification of cross-calibration approaches will support the interoperability of core outcome sets collected in the various disease areas.
Data and evidence quality assessment and labelling methodology (odnośnik otworzy się w nowym oknie)Methodology to assess the reliability of H2O outcomes by assessing data quality and the data processing by H2O systems.
Stakeholder value propositions and sustainability success factors (odnośnik otworzy się w nowym oknie)Consensus value propositions and incentives most likely to secure endorsement and investment by key stakeholders
First report on the implementation of Diabetes, IBD and Cancer Treatment core outcome sets (odnośnik otworzy się w nowym oknie)FFirst, preliminary report on Diabetes, IBD and Cancer Treatment core outcome set implementation with recommendations for updating core outcome set in Tier One Countries.
Development of core elements of stakeholder-centric reports (odnośnik otworzy się w nowym oknie)These core elements will form the basis of the stakeholder-centric reports created in two iterations.
Project KPIs and success metrics (odnośnik otworzy się w nowym oknie)List of agreed Key Performance Indicators and how they will be measured and tracked throughout the project, and KPIs for the H2O solution.
Bylaws of the Patient Advisory Boards (odnośnik otworzy się w nowym oknie)Terms of reference and principles for the selection of participants, operation and governance of PABs in the three disease specific WPs.
Scientific publication plan (odnośnik otworzy się w nowym oknie)Plan development to support and promote scientific publications and participation in conferences.
Data Management Plan v1 including first version of master informed consent (odnośnik otworzy się w nowym oknie)Intended data sources, processing, adoption of FAIR principles and potential shareability of data post-project.
Development of an architecture blueprint (odnośnik otworzy się w nowym oknie)The architecture blueprint will guide the development of local, regional, national and European infrastructure components developed iteratively throughout the project.
H2O information governance and ethics framework (odnośnik otworzy się w nowym oknie)Portfolio of instruments and codes of practice to ensure GDPR compliance and ethical handling of outcomes data.
Operational plans for the Pan-European Umbrella Observatory (odnośnik otworzy się w nowym oknie)Operational plan containing description of main actions required for the deployment and functioning of the Pan European Observatories.
Deployment of the first version of stakeholder-centric reports (odnośnik otworzy się w nowym oknie)This initial version of the stakeholder-centric reports provided, will focus on informing physicians and patients.
Material for clinical implementation (odnośnik otworzy się w nowym oknie)This will include educational material and recommendations for patient recruitment and physician engagement
Report on educational strategies and material (odnośnik otworzy się w nowym oknie)Educational material for clinical implementation, including strategies for patient participation and physician engagement.
Project Handbook (odnośnik otworzy się w nowym oknie)Quick reference manual for partners to consult management procedures, including relevant provisions of the GA/CA in an easy to understand language. It will also explain the tools set up to facilitate collaborative work across the Consortium.
Operational plans for National Observatories (odnośnik otworzy się w nowym oknie)Operational plans containing description of main actions required for the deployment and functioning of the four National Observatories.
Material for education and clinical implementation (odnośnik otworzy się w nowym oknie)This will include educational material and recommendations for patient recruitment and physician engagement.
Observatory business architecture (odnośnik otworzy się w nowym oknie)The initial design of the national and above country Observatory network, repositories and information flows, legal and ethical governance principles.
H2O Exploitation and sustainability strategy (odnośnik otworzy się w nowym oknie)Exploitation and sustainability strategy
First annual report on the progress and success of Observatories (odnośnik otworzy się w nowym oknie)Annual report of the first year of operation of the Observatories. This will include report on methodology to assess the reliability of H2O outcomes by assessing data quality and the data processing by H2O systems.
Report on requirements specifications (odnośnik otworzy się w nowym oknie)Report including specification for digital technology selection, adaptation and/or development produced in collaboration with Workstreams 2, 3 and 5.
Overarching operational plan for National Observatories (odnośnik otworzy się w nowym oknie)Operational plan containing general description of main actions required for the deployment and functioning of the National Observatories.
Report of requirements specification (odnośnik otworzy się w nowym oknie)Definition of requirements specification for inclusion of PROMs in the outcome set and report on the specification for digital technology selection, adaptation and/or development produced in collaboration with Workstreams 2, 3 and 4.
First version of the development platform finalised and operational (odnośnik otworzy się w nowym oknie)Initial versions of the development platforms will vary between countries and can contain a comprehensive interface to patients for entering PRO data, patient consent, interfaces to selected wearable devices, as well as a physician/healthcare provider portal, supporting Clinical Decision Making. Features will be added during the project time, aiming for a flexible PRO system to support further use. WP2, in collaboration with the country teams/NOs will be accountable for this.
Project communication plan and initial tool set (odnośnik otworzy się w nowym oknie)Plan for communicating the project progress and its results. It will comprise dissemination objectives, target audience, tools and planned activities.
Training material for PAB members to enable their informed participation in decisions on indicator selection and interpreting outcome findings.
Publikacje
Autorzy:
Preston Long, Margaret R Andrews, Rob Thwaites, Nataliya Kemenyash, Tanja Stamm
Opublikowane w:
2024
Wydawca:
Zenodo
DOI:
10.5281/zenodo.15173161
Autorzy:
Long, Preston; Andrews, Margaret R; Thwaites, Rob; Stamm, Tanja; H2O Consortium
Opublikowane w:
Zenodo, 2023
Wydawca:
CERN
DOI:
10.5281/zenodo.8167404
Autorzy:
Preston Long, Valentin Ritschl, Nataliya Kemenyash, Erika
Mosor, Margaret Renn Andrews, Anouk Huberts, Georg
Duftschmid, Gemma Galán-Martinez, Yolima Cossio Gil,
Belle de Rooij, Maria-Christine Mautner, Alexandre
Chakhunashvili, Alexandra Kauttzky-Willer, Nick
Carney,Liselotte Fierens, Ann-Kristin Porth, Gottfried
Novacek, Nathalie Gerold, Flavia Loreto, Francesco
Patalano, Meni Styliadou, Tanja
Opublikowane w:
2024
Wydawca:
Zenodo
DOI:
10.5281/zenodo.12624969
Autorzy:
Liselotte Fierens, Nicholas Carney, Gottfried Novacek, C Janneke van der Woude, Britta Siegmund, Francesc Casellas, Natalia Borruel, Anouk S Huberts, Elena Sonnenberg, Nathalie Gerold, Christian Primas, Charlotte R H Hedin, Tanja Stamm, Mette Julsgaard, Gionata Fiorino, Simona Radice, Michela Luciana Luisa Zini, Evelyn Gross, Cornelia Sander, Ingrid Arijs, Vasiliki-Rafaela Vakouftsi, Tunde Koltai,
Opublikowane w:
Journal of Crohn's and Colitis, Numer Volume 18, Numer 10, October 2024, 2023, Strona(/y) Pages 1583–1595, ISSN 1873-9946
Wydawca:
Elsevier Science
DOI:
10.1093/ecco-jcc/jjad195
Autorzy:
Simone Oerlemans, Belle H. De Rooij, Christine Bennink, Lars Bullinger, Annemiek Broijl, Mattia D’Agostino, Edward Laane, Maria Teresa Lupo-Stanghellini, Aurore Perrot, Ruth Wester, Viorica Cursaru, Hans Scheurer, Jan Vesseur, Mehul Dalal, Rohini Sen, Tanja Stamm, Heinz Ludwig, Pieter Sonneveld
Opublikowane w:
Haematologica, Numer vol. 109, no. 6, Feb. 2024, 2024, Strona(/y) pp. 1956–59, ISSN 0390-6078
Wydawca:
Ferrata Storti Foundation
DOI:
10.3324/haematol.2023.284282
Autorzy:
Ann-Kristin Porth, Yuki Seidler, Preston Alexander Long, Anouk Sjoukje Huberts, Kathryn Hamilton, Tanja Stamm, Alexandra Kautzky-Willer
Opublikowane w:
Patient Education and Counseling, Numer 128, 2024, Strona(/y) 108377, ISSN 0738-3991
Wydawca:
Elsevier BV
DOI:
10.1016/j.pec.2024.108377
Autorzy:
Belle H. de Rooij, Corina van den Hurk, Veerle Smaardijk, Paz Fernandez-Ortega, Arturo Navarro-Martin, Lidia Barberio, Matthias Guckenberger, Severin Schmid, Iris Walraven, Susan Vallow, Christina Kotsi, Matthias Preusser, Erika Mosor, Jente M. Klok, Annemarie Becker, Alessandra Milani, Lyudmil Ninov, Lonneke V. van de Poll-Franse
Opublikowane w:
Lung Cancer, Numer Vol 173, 2022, Strona(/y) 5-13, ISSN 0169-5002
Wydawca:
Elsevier BV
DOI:
10.1016/j.lungcan.2022.08.021
Autorzy:
Kathryn Hamilton, Rita Forde, Mette Due-Christensen, Katarina Eeg-Olofson, David Nathanson, Sophia Rossner, Sara Vikstrom-Greve, Ann-Kristin Porth, Yuki Seidler, Alexandra Kautzky-Willer, Laure Delbecque, Asli Zeynep Ozdemir Saltik, Yvonne Hasler, Vanesa Flores, Tanja Stamm, David Hopkins, Angus Forbes
Opublikowane w:
Patient Education and Counseling, Numer Vol 116, 2023, Strona(/y) 107933, ISSN 0738-3991
Wydawca:
Elsevier BV
DOI:
10.1016/j.pec.2023.107933
Autorzy:
Ann-Kristin Porth, Yuki Seidler, Preston Alexander Long, Tanja Stamm, Anouk S Huberts, Kathryn Hamilton, Alexandra Kautzky-Willer
Opublikowane w:
BMJ Mental Health, Numer 27, 2025, Strona(/y) e301061, ISSN 2755-9734
Wydawca:
BMJ Group
DOI:
10.1136/bmjment-2024-301061
Autorzy:
Tanja Stamm, Nick Bott, Rob Thwaites, Erika Mosor, Margaret R. Andrews, Joris Borgdorff, Yolima Cossio-Gil, Simona de Portu, Marc Ferrante, Felix Fischer, Farhan Hameed, Jan Hazelzet, David Hopkins, Dipak Kalra, Thomas Metcalfe, Eva Molero, Rachel Newson, Francesco Patalano, Fabian Prasser, Matthias Rose, Mikkel Lindskov Sachs, Jeannette Soderberg, Valentina Strammiello, Lonneke van de Poll & Meni
Opublikowane w:
NEJM Catalyst Innovations in Care Delivery, Numer Volume 2 Numer 3, 2021, Strona(/y) Online, ISSN 2642-0007
Wydawca:
NEJM Group
DOI:
10.1056/cat.21.0146
Autorzy:
K. M. de Ligt, B. H. de Rooij, E. Hedayati, M. M. Karsten, V. R. Smaardijk, M. Velting, C. Saunders, L. Travado, F. Cardoso, E. Lopez, N. Carney, Y. Wengström, A. Ives, G. Velikova, M. D. L. Sousa Fialho, Y. Seidler, T. A. Stamm, L. B. Koppert, L. V. van de Poll-Franse on behalf of the Innovative Medicines Initiative - Health Outcomes Observatory (H2O) consortium
Opublikowane w:
Breast Cancer Research and Treatment, Numer 198, 2023, Strona(/y) 265–281, ISSN 0167-6806
Wydawca:
Kluwer Academic Publishers
DOI:
10.1007/s10549-022-06827-6
Autorzy:
Ann-Kristin Porth, Anouk Sjoukje Huberts, Alizé Rogge, Angèle Helene Marie Bénard, Angus Forbes, Anja Strootker, Carmen Hurtado Del Pozo, Dagmar Kownatka, David Hopkins, David Nathanson, Henk-Jan Aanstoot, Jeanette Soderberg, Katarina Eeg-Olofsson, Kathryn Hamilton, Laure Delbecque, Lyudmil Ninov, Mette Due-Christensen, Michael Leutner, Rafael Simó, Sara Vikstrom-Greve, Sop
Opublikowane w:
Diabetic Medicine, Numer 00, 2023, Strona(/y) e15259, ISSN 0742-3071
Wydawca:
Blackwell Publishing Inc.
DOI:
10.1111/dme.15259
Wyszukiwanie danych OpenAIRE...
Podczas wyszukiwania danych OpenAIRE wystąpił błąd
Brak wyników