ICPerMed structures and governance:
Essentially, the ICPerMed chairs and bodies (Steering Board, Working Groups, Advisory Board, Stakeholder Forum and Executive Committee) were constantly supported in their organisational and logistical needs, incl. taking the final steps in establishing the Advisory Board and Stakeholder Forum.
Further, an active exchange took place with the Coordination and Support Actions (CSAs) in support of ICPerMed as well as the ERA Net Cofund ERA PerMed, under the umbrella of the so-called ICPerMed Family. E.g. two Family Meetings and two dedicated meetings of the CSAs were organised.
The preparation of a European Partnership for Personalised Medicine (EP PerMed) was supported, e.g. an info day was organised together with ERA PerMed, info sheets were published and steps towards an integration of ICPerMed in EP PerMed were taken. Partners of the ICPerMed Secretariat contributed significantly to these activities.
Stimulating cooperation & transfer of knowledge:
One goal of ICPerMed is to create suitable environments or frameworks stimulating cooperation and exchange between stakeholders and ICPerMed and enabling knowledge-transfer to specific targeted groups. To this end, two Family Meetings, three workshops and one conference were successfully conducted during the runtime of this project, in accordance with the event concept.
Training and awareness support for integrating Personalised Medicine (PM) research results into healthcare:
Three ICPerMed Recognitions “Best Practices in PM” were launched. Further, several new best practice examples were published on the ICPerMed website.
Three training events were organised.
Accelerating translation, implementation and innovation:
A guidance document on services of the Biological and Medical Research Infrastructures (BMS RIs) and a set of recommendations was developed and distributed.
Further, a guideline document to collect recommendations for funding agencies involved in PM-related funding calls was developed, to foster open access to PM research data and the published research results.
Via a survey, barriers that PM research projects encounter concerning the implementation of their results, were identified. The results were published, together with potential strategies to overvcome the barrieres.
A list of new stakeholders to be targeted was composed, in order to establish collaborations to foster PM research data sharing, transfer and exploitation.
Research and Implementation Assessment:
The ICPerMed Secretariat collects information on PM-related initiatives, programmes, research projects and activities in Europe as well as on significant advances in research and implementation of PM on an international level. It developed a mapping database that includes information about programmes allowing funding of research in the field of PM but also information of funding organisations within the participating ICPerMed member/observer countries. The database went online in June 2018 and is updated regularly.
First steps towards the evaluation and impact assessment of ICPerMed were taken.
The State-of-the-Art Report 2021 was published.
Dissemination:
The secretariat developed a dissemination plan specifically tailored to different target groups as well as dissemination material.
In addition to the above mentioned activities and publications, more than 130 news items, 13 ICPerMed newsletters, 12 flyers, three workshop reports and two Family Meeting reports were prepared and published during the runtime of the project.
About 620 posts were posted via the ICPerMed Twitter and LinkedIn channels.
