Descripción del proyecto
Sistemas de administración automatizada de insulina de código abierto
La diabetes de tipo 1, por la que el organismo no produce insulina suficiente para controlar los niveles de glucosa en la sangre, puede dar lugar a complicaciones físicas potencialmente mortales, sufrimiento, ansiedad y depresión. Como ayuda, los pacientes con diabetes y con conocimientos de tecnología y sus familias han desarrollado un «software» de código abierto para ajustar automáticamente la dosis de insulina en respuesta a sus niveles de glucosa, con el fin de permanecer dentro del rango objetivo y reducir la carga psicológica de la enfermedad. El proyecto OPEN, financiado por las Acciones Marie Skłodowska-Curie, es un proyecto dirigido por pacientes que recopilará y analizará los resultados de estos sistemas para comprender mejor su impacto en las vidas de las personas con diabetes.
Objetivo
Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.
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MSCA-RISE - Marie Skłodowska-Curie Research and Innovation Staff Exchange (RISE)Coordinador
4 Dublin
Irlanda