Projektbeschreibung
Automatisierte Systeme mit offenem Quellcode zur Insulinabgabe
Bei Typ-1-Diabetes produziert der Körper nicht genügend Insulin, um den Glukosespiegel im Blut zu kontrollieren. Dies kann zu lebensbedrohlichen körperlichen Folgen, Stress, Angst und Depressionen führen. Um hier Abhilfe zu schaffen, haben technisch versierte Menschen mit Diabetes und deren Familien eine quelloffene Software entwickelt, mit der die Insulindosierung automatisch an den Blutzuckerspiegel angepasst werden kann, um im Zielbereich zu bleiben und die psychische Belastung infolge der Erkrankung zu verringern. Das im Rahmen der Marie-Skłodowska-Curie-Maßnahmen geförderte Projekt OPEN ist ein von Betroffenen geleitetes Vorhaben, das die Ergebnisse dieser Systeme erfassen und analysieren wird, um ihre Auswirkungen auf das Leben von Menschen mit Diabetes besser zu verstehen.
Ziel
Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.
Wissenschaftliches Gebiet
Schlüsselbegriffe
Programm/Programme
Aufforderung zur Vorschlagseinreichung
Andere Projekte für diesen Aufruf anzeigenKoordinator
4 Dublin
Irland