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Outcomes of Patients’ Evidence With Novel, Do-It-Yourself Artificial Pancreas Technology

Opis projektu

Zautomatyzowane systemy podawania insuliny o otwartym kodzie źródłowym

Cukrzyca typu 1, w wyniku której organizm nie produkuje wystarczającej ilości insuliny, aby kontrolować poziom glukozy we krwi, może prowadzić do zagrażających życiu powikłań fizycznych, a także niepokoju, lęku i depresji. Biegłe w nowoczesnych technologiach osoby chore na cukrzycę i ich rodziny opracowały oprogramowanie otwarte, które automatycznie modyfikuje dawkę insuliny w reakcji na poziom glukozy – co pomaga utrzymać go w pożądanym zakresie oraz zmniejszyć obciążenie psychiczne związane z chorobą. Projekt OPEN, finansowany w ramach programu działań „Maria Skłodowska-Curie”, jest prowadzony przez pacjentów, a w jego ramach wyniki działania tych systemów zostaną zebrane i przeanalizowane w celu lepszego zrozumienia ich wpływu na życie osób z cukrzycą.

Cel

Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.

Koordynator

UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN
Wkład UE netto
€ 414 000,00
Adres
BELFIELD
4 Dublin
Irlandia

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Region
Ireland Eastern and Midland Dublin
Rodzaj działalności
Higher or Secondary Education Establishments
Linki
Koszt całkowity
€ 414 000,00

Uczestnicy (8)

Partnerzy (2)