Descrizione del progetto
Sistemi di somministrazione di insulina automatizzati open source
Il diabete di tipo 1, patologia in cui il corpo non produce insulina sufficiente per controllare i livelli di glucosio nel sangue, può causare complicanze fisiche potenzialmente letali, sofferenza, ansia e depressione. Per dare il loro contributo, alcune persone affette da diabete esperte di tecnologia e i rispettivi familiari hanno sviluppato un software open source per regolare automaticamente il dosaggio di insulina in risposta ai propri livelli di glucosio, al fine di rimanere nell’intervallo di riferimento e ridurre il peso psicologico della patologia. OPEN, finanziato dal programma di azioni Marie Skłodowska-Curie, è un progetto condotto da pazienti che raccoglierà e analizzerà i risultati di questi sistemi per una migliore comprensione del loro impatto sulla vita delle persone affette da diabete.
Obiettivo
Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.
Campo scientifico
Parole chiave
Programma(i)
Meccanismo di finanziamento
MSCA-RISE - Marie Skłodowska-Curie Research and Innovation Staff Exchange (RISE)Coordinatore
4 Dublin
Irlanda